Chief Executive Officer

Full Time
  • Full Time
  • Flexible location
  • Applications have closed
  • Salary: Circa £65,000

Website Metabolic Support UK

Metabolic Support UK exists for people living with the rarest forms of over 500 Inherited Metabolic Disorders (IMDs).  We do this through individual patient support, building patient communities, empowerment and advocacy.

Last year alone, we received almost 1,976 individual support enquiries from patients with 147 different IMDs.  We built or regularly engaged with 44 patient communities living with IMDs, with a total of 38,289 members.  With 30,574 unique users, we also saw a 30% increase on visits to our website – half of which were to our Covid-19 information hub.

We are now looking for an exceptional and inspiring Chief Executive to join us in our 40th year as we embark on a new ten-year strategy.  By 2030, our goal is to grow our reach, with the agility and resource to support more people and provide better outcomes for those living with IMDs.  Our strategy will ensure that MSUK remains not only current, but in the eye of the storm.

As our new Chief Executive, you will build on the small existing team and unite people through a common vision.  As an ambassador and external advocate for the organisation, you will seek out new partnerships with likeminded organisations and provide a powerful voice externally for those living with IMDs.  With a focus on digital, you will also embrace new ways of working so that we can reach and engage with a wider audience.  Equally, you will ensure we continue to grow and diversify our funding with a robust income generation strategy.

We are looking for a transformational leader who is collaborative, transparent and authentic, with a good understanding of small patient populations and their unique needs and challenges, and the drive to secure the future sustainability of the charity.  You will have strong external advocacy and/or ambassadorial skills, with the ability to engage with a wider audience and raise the public profile of a charity.

You may be operating as a CEO currently with a desire to lead an ambitious charity or you may be operating in a senior leadership role in a larger organisation looking to step into your first CEO role.  Whatever your background, you will be passionate about the needs of people living with IMDs and will be committed to finding new, creative and impactful ways of working for us to provide the best possible support to those that need it most.